NPR Profiles Precinct YALI Fellow Grace Jerry On Her Disability Advocacy Work in Nigeria

Originally published by NPR.

Grace Alache Jerry is everything you’d imagine a pageant winner should be — beautiful, smart, articulate. She’s a gifted musician, holds a diploma in law and even campaigns for the less fortunate.

But Jerry is no ordinary beauty pageant queen; she’s Miss Wheelchair Nigeria. That’s right, Jerry doesn’t strut around in stilettos. Instead, she rolls around in an electric wheelchair while wearing comfy Chuck Taylors.

As Miss Wheelchair Nigeria, Jerry is the spokeswoman for the 25.5 million people living in Nigeria with disabilities. And she takes her position seriously. She meets frequently with Nigeria’s leaders to advocate for equality and throws benefit concerts to support the disabled.

Jerry wasn’t always in a wheelchair.

Thirteen years ago, she became paralyzed after she was hit by a drunk driver. She was 21 at the time. The news that she would never walk again was difficult to accept.

“I remember being depressed for so long that my hair started falling out,” Jerry says. “I couldn’t be around others because I became wild and violent. I blamed the people around me for what had happened.”

After coming to terms with her paraplegia, Jerry decided to take music to a professional level. She had been an avid singer since she was 7, when she first joined the church choir. In fact, she had been on her way home from choir practice when she was in the accident.

Today, she’s became well-known as a Nigerian gospel artist and as a woman who sings openly about discrimination against those with disabilities.

“Becoming a woman with disability opened my eyes to the challenges persons with disabilities face,” she says. “In Nigeria, in Africa, the level of exclusion, the level of discrimination — my goodness, you don’t want to imagine it.”

Even with the title of Miss Wheelchair Nigeria, the pageant winner says she often feels excluded in her country.

She’s been invited to leadership conferences in buildings that don’t have elevators. So if the meeting takes place on the second or third floor, she can’t attend.

“When I arrive, [the organizers] say to me, ‘Sorry we didn’t even think about you. We’ll send you the details of the meeting later,’ ” Jerry says. “How am I supposed to influence decisions when I can’t even attend the meetings?”

Other times, Jerry struggles to schedule meetings with leaders. That’s when she has to pull the “But I am Miss Wheelchair Nigeria” card. And it works. Although her reign technically ran from 2010 to 2012, a subsequent pageant was never held, so Jerry still touts her crown when she needs to.

Public restrooms are another issue. Bathroom stalls in her country often aren’t wide enough for her wheelchair to fit thru.

“At that point I’m faced with one of two decisions: I can either crawl on the floor to ease myself or pee or poop myself,” she says. If she’s pressed, she admits that she often opts for the latter.

Jerry’s struggles inspired her to create the nonprofit organization Inclusive Friends, which works to bring awareness to issues of discrimination against the disabled.

One of her favorite initiatives is “Music for Toilets” (she helped think of the name). It’s a series of benefit concerts that she’s organized — and sung at — twice now. Sales of tickets and CDs go toward installing flush toilets and bringing clean drinking water at schools for children with disabilities.

In Nigeria, Jerry says, special needs schools typically have pit toilets, which require squatting over a hole.

“Imagine a child that has polio or a child that has to move around in a wheelchair who gets to a pit toilet,” she says. “You know how unhygienic a public toilet is, so imagine a girl with a disability having to crawl on the floor to be able to access it. Look at the danger she is faced with.”

The first “Music for Toilets” funds went to a school for the blind in 2012. Twenty toilets were installed. And after hearing about the fund raiser, a donor provided money to install a solar-powered fountain at the school as well. Before that, the children drank water from a hand-dug well that wasn’t covered to prevent contamination.

The second benefit concert was in 2014. The goal was the same: purchase toilets and install safe drinking water systems at six special needs schools. Inclusive Friends raised enough money to help three schools but is still seeking funds to help the rest.

So in addition to giving concerts and putting out CDs, Jerry says she will keep singing for toilets.

The Presidential Precinct has done it’s own write-up on Grace, her advocacy work, and her recent introduction of President Obama at the YALI Presidential Summit in Washington D.C. Check it out here.